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Un/Paid Labor: Medicaid Home and Community Based Services Waivers that Pay Family as Personal Care Providers

Report Family Caregiving
December 14, 2016

There are a number of benefits to allowing family caregivers to serve as paid personal care providers, including better health and satisfaction outcomes, expanded workforces, and cost effectiveness. The purpose of this study was to examine how Medicaid HCBS Section 1915(c) waivers for people with intellectual and developmental disabilities allocate personal care services to pay family caregivers.

Key Takeaways

Two-thirds of waivers in FY2014 allowed for family caregivers to potentially be paid for personal care services.
This amounted to $2.71 billion of spending in FY2014, more than half of all personal care service expenditures.
Waivers most commonly allowed parents and guardians to be the paid family provider.

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