Home care workers and family caregivers often work together to support older adults and people with disabilities, allowing them to remain in their homes and communities. The two complement each other—when family caregivers are not able to provide all the care their loved ones require, home care workers often fill in the gaps to ensure that older adults and people with disabilities receive the support they need. A home care worker can also be a central part of the care team, working with clients and families to deliver the best care possible. Unfortunately, the cost of hiring a home care worker is often out of reach for many families—without financial assistance, family caregivers are increasingly strained to provide this care alone, incurring significant out-of-pocket costs and toiling with the physical and emotional pressures associated with caregiving. In addition, many family caregivers reduce their work hours or even quit their jobs to take care of relatives.
As one approach, PHI supports the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act, a federal effort to establish a national strategy for family caregivers. We also urge federal leaders to support training initiatives, research, and other innovations that promote a holistic approach to care management among home care workers, their clients, and family caregivers.
- AARP. 2016. Family Caregiving and Out-of-Pocket Costs: 2016 Report. Washington, DC: AARP.